Elliot Pedals up Valuable Support for Charity

July 9, 2016

Elliot is the son of Sally and Mike Parfitt, who run Shepton Mallet’s Crusader Windows, a long-standing fabricator and installer of high quality VEKA window systems.

Elliot, who works at the family-run company, on Charlton Road, is taking part in the Prudential RideLondon event which will see professional and amateur cyclists participate in a 100-mile challenge on specially closed roads around London and Surrey.

Having lived with a genetic condition called Tuberous Sclerosis Complex (TSC) from birth, Elliot is riding to raise funds and awareness for the Tuberous Sclerosis Association, an organisation that has provided invaluable support for him and his family.

Elliot explains: “TSC can affect different people in different ways and can cause growths on the brain, heart, eyes, kidneys, lungs and on the skin. For me, it started with severe fits as a baby, which thankfully haven’t returned since treatment at seven months old. Due to TSC, I have mild learning difficulties, I am autistic, I have angiofibromas on my face and growths in my brain and kidneys (including a particularly large one in my left kidney called an angiomyolipoma) and a retinal astrocytoma in one of my eyes.

“TSC has affected me in a number of ways but I don’t let it rule my life. I aim to complete the 100 miles in the best time possible! I want to raise money and support for the Tuberous Sclerosis Association to thank them for being there for me and my family.”

Elliot’s Mum Sally adds, “The TSA is an incredibly valuable resource for people living with TSC. The charity supports a fantastic, specialist clinic at the RUH, Bath, with amazing doctors, and also funds research into what can be a devastating condition, while providing advisors to offer much-needed support.

“Elliot’s Dad Mike and I are so proud of him and we can’t wait to cheer him on at the RideLondon event as he raises money for such a fantastic charity.”

If you’d like to support Elliot and the Tuberous Sclerosis Association, you can find out more and donate at justgiving.com/fundraising/sally-parfitt

Crusader Windows has recently made the change over to VEKA’s new M70 PVC-U system, due to its contemporary good looks and even greater energy efficiency. Mike Parfitt said: “We’ve always appreciated the quality of VEKA’s systems and the customer service the company offers. Their engineers made sure the M70 retooling was smooth and straightforward and we were soon up and running producing the new system.”

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